Stoma Support Study
The Stoma Support Study was carried out at Keele University and funded by the NIHR School for Primary Care Research (SPCR). Researchers collaborated with young people who have inflammatory bowel disease (IBD) and a stoma, and a multidisciplinary group of healthcare professionals (HCPs), to co-design a digital intervention to support the management of distress experienced by young people after stoma surgery. The intervention comprises two components: a) a brief training package for HCPs to enhance identification and management of stoma-related distress; and b) a resource to support young people to self-manage and reduce distress.
Throughout the study, researchers worked closely with a PPIE group of nine young people with IBD and a stoma. In this video, three PPIE members, Megan, Sahara and Lucy, discuss their experiences of stoma surgery and of taking part in the study: https://www.youtube.com/watch?v=O0RsrV6RJIM