“Of course we all looked it up straight away”: how the internet is transforming our experience of being ill

The last decade has seen a remarkable shift in how people use the internet in relation to their health and it is now talked of as a routine feature of being ill. 

Professor Sue Ziebland, director of the Health Experiences Research Group, based in the Nuffield Department of Primary Health Care at the University of Oxford will share these findings with health practitioners and researchers at the South West Society for Academic Primary Care (SW SAPC) meeting hosted by the Centre for Academic Primary Care at the University of Bristol, today [06 March].

This study examined interviews with patients conducted between 2001 and 2013 and explored how people talked about the internet, capturing changing attitudes towards the use of the internet for health across the last decade.  

In the early 2000’s people who sought health information online saw themselves as particularly engaged, expert and activated patients. By 2013 the web had become an almost routine part of many people’s experience of health and illness. The internet has transformed how people make sense of and respond to symptoms, decide whether to consult, make treatment choices, cope with their illness and connect to others.

The study found that people want more than just information online, they also seek reflections, insights and practical advice from other patients. Every year millions of people use sites such as Oxford’s www.healthtalkonline.org to learn about their health issues from other patients. Film, animations, sound, pictures and personal experiences online make health information more digestible for people from all backgrounds. By helping people to learn about their condition, prepare for consultations and demonstrate to doctors their interest and involvement, the web may even help to undermine some health inequalities. 

Increasingly doctors are aware of this and recommend useful sites to their patients yet, even in 2013, patients were reluctant to talk to their doctors about what they find online,  fearing that such revelations might damage their relationship with their doctor. 

Professor Sue Ziebland said “GPs and nurses who recognise that people are using the internet when they are ill can support and discuss the information with their patients; those who do not recognise this shift can unwittingly undermine and patronise their patients”