How do we meaningfully involve people in primary care research from marginalised communities?

Conference: 
SAPC ASM 2022 - UCLan
Talk Code: 
2F.1
Presenter: 
Rebecca Morris, Kelly Howells, Kay Gallacher, Jo Brown, Mat Amp
Author institutions: 
Rebecca Morris, University of Manchester Kelly Howells, University of Manchester Kay Gallacher, Public Contributor Jo Brown, Groundswell Mat Amp, Groundswell

Workshop aims 

Involving patients and the public in primary care research is a key component throughout the research cycle yet there remains continuing issues about how to meaningfully involve people from marginalised communities. This workshop aims to explore different approaches to involvement and participatory research with people from marginalised communities.    

Objectives 

1.            To define what is meant by ‘marginalised’ and limits of current public involvement approaches 

2.            To provide a safe space for active discussion about the opportunities as well as challenges of involving patients or members of the public from marginalised communities 

3.            To share experiences and learning of different types of patient and public involvement and participatory research for working with people from a range of communities   

Format 

An active workshop where participants will be encouraged to share their experiences and network: 

1.            A short introduction defining what is meant by ‘involvement’, ‘marginalisation’ and ‘participatory approaches’. (10 minutes) 

2.            A brief participatory ice breaker ‘speed dating’ exercise to get attendees to know other people in the room and their experience (10 minutes) 

3.            Small group discussions where attendees will brainstorm the opportunities and challenges are working with different communities (20 minutes) 

4.            Full group discussion to identify opportunities for developing involvement and participatory opportunities with marginalised communities and the implications for individuals, organisations and wider policy. (20 minutes) 

This workshop will be jointly facilitated by members of the public, peer researchers, Groundswell (an organisation that works with people with experience of homelessness), and academic, and members of the PPI and participatory approaches to academic primary care SIG.   

Content 

Working with communities and individuals who are traditionally identified as marginalised is an important component of developing systems and research that addresses topics of need from people within these communities. COVID-19 has highlighted and exacerbated inequities that existed within health care and research and provided opportunities to rethink existing practices about involving in primary care research. For example, using online meetings with auto-captioning may allow people who have hearing loss to be involved in discussions or conversely may have excluded people who do not have access to technology.    We will facilitate an interactive discussion exploring the opportunities and challenges across different types of involvement and participatory approaches with opportunity to share experiences, uncertainties, facilitators and barriers so attendees will develop a range of tools and knowledge to support them to involve people from marginalised groups.   

Intended audience 

Members of the public, researchers, academics, health care professionals, anyone with an interest in involving people in primary care research