Barriers and facilitators to optimising heart failure management in ethnic minorities: A meta-aggregation of qualitative studies

Conference:

SAPC ASM 2020 - cancelled due to pandemic

Talk Code:

D.5

Presenter:

Muhammad Hossain

Twitter:

@drmzh

Co-authors:

Nadia Corp, Carolyn Chew-Graham, Stephanie Tierney, Faraz Mughal, Tom Kingstone, Emma Sowden, Thomas Blakeman, Faye Forsyth, Susana Borja Boluda, Christi Deaton

Author institutions:

Keele University, University of Manchester, University of Cambridge, University of Oxford

Problem

An estimated 0.9 million people live with Heart Failure (HF) in the United Kingdom (UK), accounting for 5% of emergency hospital admissions. Evidence from the UK shows young South Asians are at higher risk of developing HF than young white Europeans and among South Asians, Bangladeshis and Pakistanis are thought to be at greater risk of HF. However, research examining the views and experiences of HF among ethnic minority groups are limited. Previous qualitative research has explored attitudes towards optimising management of HF, diagnosis and treatment, barriers and enablers to service use and support. There is a need to synthesise this work to provide a coherent critical summary, to improve care and service provision for patients, and suggest areas for future research. The aim of this systematic review is to appraise and synthesise the best available qualitative evidence to provide a better understanding of the barriers and facilitators to optimising HF management in people from ethnic minority groups.

Approach

A systematic review of qualitative research exploring patients’ and carers’ perceptions of HF management is being conducted. Seven databases will be searched from inception (EMBASE, MEDLINE, AMED, CINHALPlus, PsycINFO, ASSIA and Web of Science). In addition, a grey literature search, citation tracking and reference checking of included articles will be undertaken. Articles will be screened using inclusion and exclusion criteria, and full-text articles selected for inclusion will undergo data extraction and quality appraisal using the Joanna Briggs Institute Qualitative Assessment and Review Instrument (JBI QARI). Screening, data extraction and quality assessment will be performed independently by two reviewers. Where there is conflict, this will be resolved through discussion, or a third reviewer will be involved when an agreement cannot be reached. Findings will be synthesised using meta-aggregation guided by the JBI QARI.

Findings

The review is ongoing and findings from this review will be first presented at the SAPC ASM 2020 - Leeds. Barriers and facilitators to optimising HF management in people from ethnic groups will be presented. Preliminary analysis suggests that people from minority ethnic groups have different beliefs about HF and its treatment which impacts on self-management and access to the services. The diverse religious and cultural traditions of different ethnic groups may affect their knowledge of HF and how they engage with self-management.

Consequences

The findings will have the potential to inform clinical practice and policy that will reflect the views of ethnic minority groups, to ensure services are culturally and religiously appropriate, accessible and personalised to their needs. The results will provide directions for healthcare providers to improve supportive strategies in the care of HF people from ethnic minority groups.

Submitted by:

Muhammad Hossain

Funding acknowledgement:

This work is independent research funded by the National Institute for Health Research School for Primary Care Research (NIHR SPCR), Grant reference number 384. The views expressed are those of the author(s) and not necessarily those of the NIHR, the NHS or the Department of Health.