Online patients' communities in primary care research: ethics and research methods

Talk Code: 
Anna De Simoni
Author institutions: 
Facilitators: Anna De Simoni, Centre for Primary Care and Public Health, QMUL Neil Coulson, School of Medicine, University of Nottingham Richard Ashcroft, School of Law, QMUL Gunther Eysenbach, Institute of Health Policy, Management and Evaluation, University of Toronto; Centre for Global eHealth Innovation, Toronto, Canada Matt Jameson Evans, Co-founder of HealthUnlocked Chris Griffiths, Centre for Primary Care and Public Health, QMUL


•             To raise awareness of online patients’ communities and their potential as source of data in primary care research; 

•             To provide an ethical framework for research on online patients’ communities;  

•             To begin an important dialogue in regards to using online patients’ communities to complement other primary care research approaches.   

Submitted by: 
Anna De Simoni