8th Helen Lester Memorial Lecture: Irene Tuffrey-Wijne and Richard Keagan-Bull

Helen Lester Memorial Lecture - presenters

Monday 4th July 2022, 17.30-18.15 @ UCLan

This is an annual lecture in memory of Professor Helen Lester

Public lecture, free attendance.  If you are not planning to register for the main SAPC conference 4-6 July and only wish to attend this lecture please sign up for free.

Lecture title: STAYING ALIVE!
The needs of people with learning disabilities towards the end of life: Why researching together is better (and how you can do it)

Richard Keagan-Bull:

Richard is a Research Assistant at Kingston & St George’s University. He works on several projects, including Growing Older, Planning Ahead and the LEDER programme, which helps people with learning disabilities to stay alive! He is delighted to have this job, as it is not easy for a person with a learning disability to get proper employment.

Richard enjoys speaking up. He is an advocate for people with learning disabilities. He was co-chair of the Lambeth Assembly for People with Learning Disabilities for 10 years. He was the Founder Chair of the National Speaking Group for L’Arche (the organisation that provides his support).

Richard lives in London. In his spare time, he enjoys going to the theatre and going to the swimming pool.


Irene Tuffrey-Wijne:

Irene is a nurse by background, and has worked in both learning disability and palliative care settings. She is Professor of Intellectual Disabilities and Palliative Care at Kingston & St George’s University of London. She has spent many years doing research together with people with learning disabilities, learning about the end of life and bereavement support. She is recognised as the leading international expert in this area.

Originally form the Netherlands, Irene has lived in London for decades. In her spare time she enjoys reading and making music, and like Richard, going swimming – but unlike Richard, her preference is for Very Cold Water.